The EURORDIS Black Pearl Awards is an annual event held in Brussels to recognize the outstanding achievements and exceptional work of people making a difference for the rare disease community.
Taking place in February 2020 to mark the occasion of Rare Disease Day, this event celebrates the inspirational qualities of people living with a rare disease along with those who go that extra mile to make a difference to their lives.
The black pearl symbolises these unique individuals, organisations and companies who demonstrate an incredible combination of hard work and dedication in their daily lives.
This includes the ever-growing contributions of patient advocacy groups, volunteers, scientists, companies, media, and policy makers towards alleviating the impact of rare diseases on people’s lives.
*NEW AWARD* The new category for 2020 is the Holistic Care Award. This award is presented to a team of care professionals or of organisations that provide or support the provision of coordinated and holistic care, support and guidance to rare disease patients and their careers, involving patients as partners. Holistic care takes into account the 360º spectrum of health, social care, including the patient journey and everyday needs.
To submit a nominations please click here. Nominations are open until September 13, 2019.