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HTAi Webinar | Why do we need a New Paradigm for Evidence Generation and Assessment in Rare Disease Technologies?
February 27 2:00 pm – 3:30 pm
This multi-stakeholder webinar will explore challenges in evidence generation for rare disease technologies (RDTs) and the impacts this has for assessment in HTA, and how to overcome it. It will present results from a recent survey of evidence assessment frameworks for RDTs and insights from an international patient expert leading evidence generation and who is an HTA scientific advice patient expert. Discussants will present activities underway to develop new approaches to evidence assessment in range of initiatives relevant to healthcare decision-making, in dialogue with an HTA body representative considering relevance to HTA.
Date and Time
February 27, 2025 | 14:00 – 15:30 GMT+1