This webpage sets out some of the challenges in involving patients and the public in HTA, development of methodologies, and optimising and assessing the impact of their knowledge and values.

FAQ: A Methods and Impact Working Group perspective(PDF)

HTAi 2016 Panel Session Report on Patient Involvement in the Development, Regulation and Assessment of Treatments for Rare Disease

Ethics Guidance

National Codes of Practice on relationships between the pharmaceutical industry and patient organisations:

Citizen and Patient Involvement Library – See the HTAi Vortal for peer reviewed papers on patient and public involvement in HTA. This resource was developed in collaboration with the Information Retrieval IG and includes collected papers on

  • Citizens Juries and the Public Perspective,
  • Qualitative research to capture patient and carergiver experiences, and
  • Measuring the impact and evaluating processes of patient and public involvement.