For Patient Groups and Individual Patients

This webpage aims to provide patients and patient groups with an understanding of their role and contributions they can make in HTA, and what they can expect.

Frequently Asked Questions for Patient Groups and Individual Patients

Resources to Understand HTA

Values and Quality Standards for Patient and Citizen Involvement in HTA

HTAi 2016 Panel Session Report on Patient Involvement in the Development, Regulation and Assessment of Treatments for Rare Disease

Introducing HTA to patients and patient organizations webinar – A 20-minute video presentation by Karen Facey, for patients, patient organizations, self-help groups and citizens’ groups’, filmed at the 2013 HTAi Annual Meeting HTAi in Seoul.

Health Equality Europe: A Guide to Understanding HTA for Patients and the Public – Written for patient organizations who want to represent the views of patients but may not clearly understand what HTA is and how they can contribute.

HTAi Glossary for Consumers and Patients – HTA terms explained in plain language.

Citizen and Patient Involvement Library – See the HTAi Vortal for peer reviewed papers on patient and public involvement in HTA. This resource was developed in collaboration with the Information Retrieval IG.

Scottish Medicines Consortium (SMC) Review of Patient Involvement

The European Patients’ Academy (EUPATI) – Short guides and videos about HTA (Weblink)

Resources to Involve Patient Groups and Individual Patients in HTA 

The following tools are to assist Patient Groups in providing HTA agencies with information on patient and caregiver experiences, living with the disease, its management and any harms and unmet needs.

Questionnaire – Help us create an online directory of patient involvement in HTA resources.

Online Resource Directory – Links to government and organization resources to assist patients and citizens in HTA in their countries.

Patient Group Submission Templates – Generic patient submission templates for an HTA, with useful prompts (English and French):

The French translations has been kindly produced and made available by Haute Autorité de Santé (HAS), the French national HTA body. The Spanish translations are from Agència de Qualitat i Avaluació Sanitàries de Catalunya (AQuAS), Spain.

Guidance for providing patient input using the templates – Guidance for patient organisations to completing a patient group submission template: For health technology assessment and appraisal of medicines

Other Useful Guides

Ethics Guidance

National Codes of Practice on relationships between the pharmaceutical industry and patient organisations: