Are you new to HTA? Are you interested in connecting with the global HTA community and supporting work to develop HTA in the field of rare diseases in one of the HTAi Interest Groups?
The Rare Diseases Interest Group (RDIG) is looking for a dedicated and enthusiastic individual who is willing to provide two days a month to support its Chair Co-Chairs and Steering Committee as a Technical Officer (TO), from January to December 2025. Examples of responsibilities include planning agendas, setting calls, drafting papers, taking minutes, supporting organization of HTAi annual meeting sessions, drafting slides and presenting, interacting with RDIG project members, HTAi members and staff, supporting grant funding processes with HTAi.
About RDIG
The RDIG explores how evidence generation for HTA can be improved in rare diseases (RDs) and how HTA processes can account for the complexities that arise in the determination of value for health technologies in RD populations.
The aims of the RDIG are to:
- Develop awareness of the specific challenges associated with studying rare disease populations, not just in terms of small populations, but in understanding natural history and disease progression, paucity of knowledge about optimal endpoints given complex disease manifestations in diseases that are often chronic and implications of studying diseases that predominantly have childhood onset and are genetic, etc
- Share good practices in generation and interpretation of evidence in RD populations for HTA purposes.
- Explore how HTA (assessment and appraisal) processes can consider wider aspects of value in RD populations within the context of fairness to society, setting new standards for HTA in RDs.
If this is something of interest to you, please complete and submit the HTAi Technical Officer Application Form and your CV to nvicari@htai.org by Friday November 29th 2024.
If you wish to discuss the role with the current Technical Officer, please contact Lea Wiedmann at to.rarediseases@htai.org. The successful candidate will be notified by the end of the year. Please note that you must be an HTAi member in good standing to apply for this position. If you have not renewed your membership, you can do so here.
If you have any questions, please contact Nicola Vicari (Coordinator of Scientific Activities) at nvicari@htai.org.